We are scheduled for what Mary and her Daddy are now calling her "wiggle" procedure for Tuesday at a different facility than we usually go to. Dr. Scott wants to do it next week and scheduled it at the location he could find time in an Operating Room.
Since the hardware holding the top ring in place came loose and allowed the top ring to "wiggle" Dr. Scott wants to put Mary under anesthesia so he can verify the top ring is correctly aligned. While he is doing it he will also do some intensive PT on her knee. It's amazing how quick (in just a day) her knee tightened up while her leg was so tender from her first infection making her not wanting to move it again.
The facility is actually much nicer than the one we usually go to but we are comfortable with the "normal" one. It becomes your second home. Mary and I looked on the new facilities website tonight and surprisingly she quickly adapted to the idea (unlike last night when we were discussing the possibility). Tonight she said she just cares that it will be Dr. Scott she doesn't care where it is done. I felt better after reading they actually have a specific pediatric unit. Her Daddy has taught me to be paranoid about risk of x-rays and anesthesia. I was happy to read they specifically advertise that they use lower dose x-rays etc. for children. I feel better that they have pediatric anesthesiologists that won't be overdosing my kid.
The procedure should take 20 minutes total but the OR is scheduled for the minimum of 45 minutes. I am bummed about the fasting and general anesthesia for such a minor procedure but as long as it is successful...
I just got caught up on all you have written. AMAZING!!! You and your daughter are amazing and such a blessing to the rest of us that are still waiting for this to come. Your pictures and information regarding your journey is so informative. I am so greatful. I pray that all went well yesterday and she continues to heal from this infection very quickly and gets back on track with the entire healing process. What an amazing thing to lengthen a bone in this manner. It's almost unperceivable!
ReplyDeleteLauretta
YB Ranch
Thank you Lauretta. We are glad it's been helpful. The infection seems to have quickly gotten under control. Yes, when we discovered her legs were different lengths when she was a baby I thought - what can you do? You can make it longer but it is amazing that you can!
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