Progress

• Today I realized we all need to be able to visualize how far we have come so I created a calendar to keep track. I only have the 3 months that involve lengthening up and it's nice to see that we are over half way (approx. 10-30 more days!) through the hardest part. Once we get the length we have another 100-140 days depending on how much length we get but we will focus on that once this first phase is over.

Pink days are hospital days, green days are lengthening days, and white days we didn't lengthen

• Last night was the first night since June 19 (wiggle procedure) that Mary's hip, glutes, and back didn't hurt. We started using Bio-Freeze (what we use on our sore backs) on her so I am not sure if it was the Bio-Freeze or just her body getting adjusted to the new straight leg. Her toes were a totally different story...




Bio-Freeze from chiropractor but rumor is Bed, Bath & Beyond sells it


• Today was a better day for Mary but at dinner she didn't have much of an appetite and ended up with chills: this whole process can be so unpredictable!



Trying to warm up from chills

• Mary confided in me tonight that it's hard seeing her little sister grow up and having to have her Little Sister do things for her because of the fixator. It was a good conversation. We talked about the bitter sweetness of kids growing up.
• We have started using a desk chair for Mary to use at the kitchen table since it can go higher or lower and is more comfortable than the normal chair and her wheel chair plus it can be fun...

The girls going for a ride...

• Mary likes to write and is currently really enjoying a pad she received from her Great Aunt that has an area to draw a picture and an area to write a story.