Great site by an AWESOME kid in Canada with a very bright future:
http://theillizarov.yolasite.com/
Great site by a mother who has done a lot to get information on FH out to others:
http://fibularhemimelia.wordpress.com/
Great site by a mother. I particularly like the blogs starting June 7, 2011 that describe the initial surgery and first days with an external fixator. I learned a lot.
http://www.ethanfgodschild.blogspot.com/
Taylor Spatial Frame is the external fixator my daughter will have. Their website has some good practical information as well.
http://global.smith-nephew.com/us/patients/Limb_Restoration_13591.htm
We showed Mary a video of a doctor turning pins that her Daddy had found on line. I think it helped (all of us) to see a young girl not experiencing any pain. http://www.youtube.com/watch?v=BaPsuQxJSKk
American Heelers is the online company we found for my daughters shoe lifts. The craftsmanship was much better than local cobblers and much less expensive than Hanger Prosthetics. (We love Hangar for the AFO's.)
http://www.orthopedicshoelift.com/index.htm
Facebook support group:
fhlla@groups.facebook.com
I am not a Facebook person but created a page so I could have access to this resource. I still claim not to have a Facebook page when asked. :-)
Good info from a mom on how to alter clothing:
http://conni60640-ivil.tripod.com/id26.html
Thank you for the blog, your honesty and the pictures. I have a son who will get the 8 plate surgery in 2 weeks. This has really helped me get a better understanding. It’s a journey. I don’t have any other parents dealing with this so thank you.
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