Sunday, August 12, 2012

Ups, Downs, and 2nd Pin Site Infection

Things have been looking "up" since the partial removal on 8/2/12. Last week Mary did successfully attend a sewing camp for 2 1/2 hours a day every day and learned to sew a bag.

Our new focus was trying to get her to bear weight so she can begin to walk which will be the best physical therapy for her body.


She can now get the ball of her foot "down" (at 1st she could only touch her toes.)

(I know it looks like there is still a pretty large difference but it's because her leg is still so bent. Once it's straight you will be able to tell the length she picked up.)

Other than focusing on getting her knee straight I have began to worry how to build her endurance so she can comfortably and realistically get back to school full-time when it starts next week. (She only made it 2 1/2 hours out of the 6 hour a day camp.)
Today Mary had some very fun "ups" on a swing (now that she can swing again since she had the thigh ring removed.)


She had really fun "downs" going down a small ramp in her wheelchair and cruising across a playground.

But last night Mary said the area around the inside top blue wire was sensitive so we gave her Tylenol before bed for the 1st time in many days, then during the night she couldn't sleep because she said it was burning so we gave her a second dose. Today her leg is very sensitive and easily in pain which is exactly the same symptom she had last time she had an infection so we will call for a refill for her antibiotic tomorrow. Such a "downer" since we stopped the proactive prescription of antibiotic after the partial removal 5 days ago and now she has an infection. Besides the hard part of having your child in pain is it will most likely set back her Physical Therapy like last time. Ughh! 

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