Sunday, July 29, 2012

Done Lengthening!!!

Today was our last day of lengthening and we have a cake to prove it.
Towards the end of the lengthening process Mary did start feeling uncomfortable so we starting turning smaller turns twice a day to hit our number vs. turning the struts once a day to get our number. Actually with strut number one that has always been tight we turned 4 times a day to make it easier on her.

The difficult phase one is over and we CAN'T wait until Thursday when she gets the thigh ring and foot plates off. I truly think it will be one of the happiest days of my life.

We are experiencing our 3rd hardware problem. A nut is coming loose in the same rectangular cube that we had issues with two times before. We are holding it together with wax, wire, and tape until Thursday when it comes off permanently. Did I tell you we can't wait for Thursday?
Cheese wax to hold loose nut

wire and tape holding loose hardware
Sleep has been pretty rough again so we made the executive decision to not put the additional strut that keeps her leg straight on starting tonight. Our thought process is the lengthening is over so hopefully her body won't be getting any tighter and in reality we all need some sleep. She has a medical procedure on Thursday and we are anticipating some hard PT ahead of her as she gets her ankle and knee moving again so she needs rest.

We finally painted Mary's toes since you can see them all of the time. As you can see she has a lot of work on her toes ahead of her- even though we have focused on trying to uncurl them the whole time.
Curled painted toes

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